The
Department of Medical BioSciences focuses on basic and translational research in the medical biosciences, from molecules to humans, to better understand disease and health and improve diagnostics and treatment. The active group of data stewards in the department is committed to the reusability of data, tools, and services, and puts the FAIR (Findable, Accessible, Interpretable, Reusable) data principles into action.
You will be working in a newly launched EU funded project called JARDIN (Joint Action for the integration of ERNs into National Health Care systems). Any disease affecting fewer than five in 10,000 people in the EU is considered rare. These patients do not have access to diagnosis and high-quality treatment because their numbers are low. Radboudumc is one of the leading hospitals and research centres in the Netherlands with 39 highly specialised healthcare units for rare diseases. It has a prime role in a number of European Reference Networks (ERNs).
ERNs are virtual networks of networks connecting 4000 hospitals, 1,600 highly specialized health care units and patients. In 2017, the European Commission launched 24 ERNs with a range of thematic areas, from rare bone disorders and childhood cancers to rare neurological diseases.
Radboudumc Radboud university medical center is a university medical center for patient care, scientific research, and education in Nijmegen. Radboud university medical center strives to be at the forefront of shaping the healthcare of the future. We do this in a person-centered and innovative way, and in close collaboration with our network. We want to have
a significant impact on health and healthcare. We want to improve with each passing day, continuously working towards better healthcare, research, and education. And gaining a better understanding of how diseases arise and how we can prevent, treat, and cure them, day in and day out. This way, every patient always receives the best healthcare, now and in the future. Because that is why we do what we do.