PhD candidate neuromuscular diseases ‘Advance Care Planning and palliative care in FSHD’

Job description
We are looking for an enthusiastic PhD candidate for a challenging position within the Center of Expertise for Muscular Diseases. Are you a team player who wants to make a difference for people with FSHD and their families, together with our international partners? We are looking forward to meet you!

Facioscapulohumeral muscular dystrophy (FSHD) is a progressive genetic muscle disorder, causing progressive weakness in the face, shoulders, and upper arms. As individuals with FSHD age, muscle weakness extends to the trunk and legs, often leading to increasing mobility challenges. Ageing compounds the effects of FSHD, as natural muscle loss and reduced recovery capacity accelerate functional decline.

Advance Care Planning and palliative care enable patients to discuss their healthcare wishes with loved ones/healthcare professionals and to guide their care by recording their decisions. With FSHD, life expectancy is near normal, but there are significant care issues towards the end of life that are not or insufficiently addressed. There is only limited guidance available in the area of Advance Care Planning and palliative care for FSHD.

The aim of this project is to address the gap in FSHD care between routine care, advance care planning, and palliative care through multidisciplinary collaboration. Consensus recommendations will be reached and guidelines will be provided for clinicl care in later stages of life. In addition, information will be collected on mortality rates in FSHD. This research is funded by FSHD Global research Foundation and the Dutch FSHD Stichting.

Your main tasks will be to set up and conduct:

• an international questionnaire survey.
• Tqualitative research into patient experiences.
• mortality research.
• a narrative review.

In addition to writing scientific articles, you will also present the results to a diverse audience. Results will be translated into patient-friendly resources that can support families in making informed decisions and engaging in conversations about the later stages of life. This project focuses on multidisciplinary collaboration with international researchers.

In 2027, an international workshop will be organized, which will result in recommendations for Advance Care Planning and palliative care for FSHD. In preparation for this, a workshop will be held in Australia in November 2026.

Profile
You have the ambition to obtain a PhD and:

• An MSc in medicine or a relevant field, such as biomedical/health/social sciences.
• A demonstrable affinity with neurology/muscle diseases.
• You are accurate, responsible, and able to work in a structured manner.
• You are critical, flexible, and able to work on your own initiative.
• You are someone who thinks in terms of solutions.
• You have good communication skills, a good command of Dutch and English is a must, due to the international collaborations involved in this project.
• You are able to work well in a team, as well as independently.

Goed geregeld
Bij ons krijg je 8% vakantiegeld, 8,3% eindejaarsuitkering en – afhankelijk van je functie – 47% tot 72% onregelmatigheidstoeslag. Daarnaast kun je rekenen op 176 vakantie-uren per jaar (bij 36 uur/week).

Vergoeding
Je ontvangt € 0,18 per kilometer reiskostenvergoeding, OV-reizen vergoeden we volledig (2e klasse) en werk je (deels) thuis? Dan krijg je € 2,40 per thuiswerkdag. Zo is alles goed geregeld, waar je ook werkt.

Keuze model arbeidsvoorwaarden
Met ons flexibele keuzemodel bepaal jij hoe je een deel van je arbeidsvoorwaarden inzet. Koop extra verlofuren of gebruik je eindejaarsuitkering voor een fiets met belastingvoordeel. Jij kiest wat bij je past.

Warm welkom
Een goede start vinden we belangrijk. Door onze onboarding-app, ben je al vóór je eerste werkdag goed voorbereid. Tijdens de introductiedag maak je kennis met je collega’s en onze organisatie.

Omkleedvergoeding
Draag je werkkleding van het Radboudumc en kleed je je buiten werktijd om? Dan ontvang je, als het voor jouw functie geldt, een omkleedtoelage van €80,- bruto per maand bij een fulltime dienstverband.

Loonsverhoging
Bij ons wordt je werk gewaardeerd. Je salaris stijgt volgens de cao in twee stappen: met 3,5 % per 1 juli 2026 en nog eens 3,5 % per 1 mei 2027. Zo zie je in korte tijd een mooie groei in je salaris.

Werk en privé in balans
Een goede werk-privébalans vinden wij vanzelfsprekend. Met inspirerende trainingen, mindfulnessactiviteiten en mantelzorgspreekuren ondersteunen we je in elke fase van je leven.

Groei en ontwikkeling
Onze online leeromgeving heeft een breed aanbod aan trainingen, e-learnings en opleidingen – van vakinhoudelijke verdieping tot persoonlijke ontwikkeling. Zo haal je het beste uit je talent.

Welcome to Radboud university medical center (Radboudumc), where our research groups strive for innovative solutions that make impact on health and healthcare. We challenge the status quo to overcome current and future health challenges. Our goal is to shape the future of healthcare for generations to come. Our focus is on prevention, sustainability, and meaningful care, which we achieve through our in-depth understanding of disease mechanisms, clinical science, public health research, medical technology and data science. Our approach is centered on breakthroughs that can truly enhance personalized healthcare and public health.

At Radboudumc, a comprehensive range of research programs provide the compass for our research efforts. Each program has a clear goal, where collaboration within and outside our organization is highly valued. We integrate care, education and research in partnership with our patients to ensure that our research programs have significant impact on health and healthcare. We invite you to join us in our mission to create a healthy future for all.

Place of work
As a PhD candidate, you will be working in an enthusiastic and driven multidisciplinary team within the Center of Expertise for Muscular Diseases, part of the Neurology department. Radboudumc is a recognized center of expertise for multiple hereditary muscle diseases, providing care, research, and innovation. The Radboudumc Muscle Disease Center offers unique facilities where patients of all ages are treated by a multidisciplinary team. We are also part of the FSHD expertise center, together with Leiden University Medical Center (LUMC).

You will work closely with colleagues in the Netherlands and abroad in the fields of Advance Care Planning, palliative care, and geriatrics. You will be part of a professional and collegial team in which openness and accessible cooperation are key.

Department of Neurology
At the department of Neurology, you provide care for patients with disorders of the brain, spinal cord, muscles, and nerves. You combine academic expertise with personal attention and multidisciplinary collaboration. You diagnose, treat, and guide patients with a wide range of neurological conditions, including acute neurological care such as TIAs and strokes. For children, a specialized team is available within the Amalia Children’s Hospital.

• Please provide your application letter in English, your CV may be uploaded in Dutch.
• The salary depends on education. Scale 10 will be offered to MSc medical graduates. Those holding degrees in other disciplines will be offered scale 10A.
• This position requires a Certificate of Conduct (VOG).

Meer Weten?
We vertellen je graag meer!

Stacha Reumers
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