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Applications are invited for one Early Stage Researcher post to work with Professor Lieve Van den Block and Dr. Lara Pivodic as part of a European-Commission funded Marie Skłodowska-Curie Innovative Training Network (ITN), “DISTINCT” (http://www.dementiadistinct.com). The successful applicant will work within the End-of-Life Care Research Group and register for a PhD at the Vrije Universiteit Brussel (VUB), Brussels, Belgium. The End-of-Life Care Research Group (http://www.endoflifecare.be/) is an internationally leading research group at the crossroads of palliative care, ageing and dementia, and end-of-life care. It consists of more than 40 researchers with a background in social and medical sciences.
The DISTINCT (Dementia: Intersectorial Strategy for Training and Innovation Network for Current Technology; www.dementiadistinct.com) network comprises of ten world-leading research organisations plus IDES, an enterprise for technology, research and care, as well as nine partner organisations including Alzheimer Europe, Alzheimer’s Disease International, the World Occupational Therapists Federation, two other major universities and three other enterprises. DISTINCT works with INTERDEM (Early detection and timely INTERvention in DEMentia), a large international collaboration enabling training and development opportunities for all grades of researcher from PhD students to senior academics to develop capacity for future research in dementia care.
The overarching research goal of the DISTINCT project is to improve the usability of technology in dementia care by evaluating its effectiveness and implementation issues in relation to social health. A total of 15 Early Stage Researchers (ESRs) will be hosted across the network and will work in research, a network-wide training program, public engagement activities and collaboration with network partners through short-term secondments in European industrial/academic partner laboratories. Candidates interested in more than one position need to apply separately to each centre hosting ESRs and a final decision will be taken together at the interview event (see below for details). Details of all DISTINCT ESR projects can be found at: www.dementiadistinct.com
Project: An interactive website for advance care planning (ACP) for people with dementia and their family
As part of a multidisciplinary research team, the successful candidate will work on a study that aims to develop an online tool to support persons with dementia and their caregivers in holding advance care planning (ACP) conversations. Advance care planning is the continuous, early-initiated process of communication and discussions between health care providers, patients and families about the goals and desired direction of future health care, including end-of-life care. ACP is particularly relevant for people with dementia, given the progressive course of the disease in which people can lose cognitive capacity. Current ACP guidelines are strongly focused on professionals and how they should approach ACP discussions. However, there is a lack of good ACP tools for patients and relatives to conduct ACP conversations in their home environment.
The Early Stage Researcher will be involved in developing an online ACP tool (interactive ACP website) to support communication and discussions between people with dementia and their caregivers. She or he will work closely with patients, with dementia at various stages of their illness, family carers, healthcare professionals and computer scientists. She or he will test the feasibility, usability and effectiveness of the ACP tool in people with dementia and their family carers through qualitative (interviews and focus groups) and quantitative (structured questionnaires / surveys) research methods.
The Early Stage Researcher will also complete two secondments: of one month and five months.
Requirements for the Post
Candidates will be required to meet the Marie Skłodowska-Curie Early Stage Researcher eligibility criteria: (http://ec.europa.eu/research/mariecurieactions/). Specifically, at the time of appointment candidates:
Qualifications/Education:
Skills/Training:
Experience:
Additional qualities:
Fixed-term contract: 36 months.
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